Parents Race To Save Toddlers Life After Rare Genetic Disease Diagnosis | Nightline

Parents race to save toddler’s life after rare genetic disease diagnosis | Nightline

Parents' experience caring for baby with rare, deadly, genetic disease

Montreal Gazette

Race Against Time | Families with kids diagnosed with aging disease remain positive | Sunday Night

7 News Spotlight

Yukon family fighting to save baby’s life after rare condition diagnosis

Advice to Parents of Children Diagnosed with Terminal Rare Diseases

Nevada baby diagnosed with rare genetic disorder

News 3 Las Vegas

Family raising awareness to rare genetic disorder after daughter diagnosed

$2.1 million drug approved for toddler with rare genetic disease

Parents of children with rare genetic disease bond over dire diagnosis

FOX19 NOW | Cincinnati

A parent's impossible choice: saving siblings with rare Sanfilippo syndrome | 60 Minutes Australia

60 Minutes Australia

Baby with rare genetic disorder teaches lesson of love and beauty in her short life

ABC Action News

Meet One of 20 Kids in the World Diagnosed with Rare Disorder

Family Fighting for Research for Son’s Rare Genetic Disorder

Toronto family tries to raise $3M to treat son's rare genetic disorder

CBC News: The National

Southport parents fight to save their son and others from rare genetic disorder

7's Hero: Meridian toddler and her family raise awareness for a rare genetic disorder

KTVB

Family racing to raise money to treat toddler's rare and life-threatening neurological disease

Hollywood boy diagnosed with rare genetic disorder after months of uncertainty

Parents of boy with rare disorder hope to help other parents

Dorset toddler has rare genetic condition

BBC South Today